BDCatalyst-RFC-5: Subject Identifier for MVP
BDCatalyst-RFC-5: Subject Identifier for MVP: There was a pressing need in BDCatalyst to identify subjects across data sets and systems. The consortium discovered that several platforms were using their own unique subject identifiers, rather than one unified methodology. In order to move through this blocker, the following method for identifying subjects was proposed by participants of the 2019 Boston F2F and subsequently agreed upon by the BDCatalyst consortium:
Studyidentifier (with version)_submitted subject ID
phs<#>.v<#>_submitted subject ID
The study identifier comes from dbGaP. The submitted subject ID was provided by the researcher who submitted the data to dbGaP.
The dbGaP submission guide has more information.